Today they took some test on Alicia and she started the new meals. The first couple of days she will get all the meals as fluids and then we will learn how to prepare the food for her.
Since Alicia is not sick but we still need to visit the hospital a couple of times every day this first week we were lucky to be able to stay at the Ronald McDonald house a few minutes walk from the hospital. It's like a hotel were we have our own room with our own bathroom. There are a lot of common areas with couches, a kitchen were we can cook our own food, game room with a ping pong table and a pool table and one room filled with toys.
It feels like this week will be a lot easier to get through now when we can stay here!
Here is a short description from Wikipedia:
The ketogenic diet is a high-fat, adequate-protein, low-carbohydrate diet that in medicine is used primarily to treat difficult-to-control (refractory)epilepsy in children. The diet forces the body to burn fats rather than carbohydrates. Normally, the carbohydrates contained in food are converted into glucose, which is then transported around the body and is particularly important in fuelling brain function. However, if there is very little carbohydrate in the diet, the liver converts fat into fatty acids and ketone bodies. The ketone bodies pass into the brain and replace glucose as an energy source. An elevated level of ketone bodies in the blood, a state known as ketosis, leads to a reduction in the frequency of epileptic seizures.
Daddy and Alicia started the day of with a nice nap :)
When we got back to the room this afternoon Alicia was in a good mood and played with her toys for a little bit.
Miss you two! Love you two! See ya tomorrow!
ReplyDeleteLove,
Daddy
Prayers being sent. Let me know if you need anything.
ReplyDeleteOh we pray that this will be the answer to all of those seizures! You are taking a big step into the unknown, with much confidence. Dad and I are proud of you two. Please wish Liam a happy birthday for us. Always hard to call him with the time difference. We are adding an additional $30 in the checking account for you to pick out something for him. Luv, MeMere
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