Thursday, November 13, 2014

Feeding tube

We are in the process to get Alicia started on a ketogenic diet that is an alternative treatment for kids with epilepsy. 

At the moment Alicia has daily seizures and we fell very positive to try this diet and hopefully she won't need any additional medicines.

The first step to get started was that Alicia needed to get a feeding tube operated to her stomach. The diet is very strict and everything she will eat and drink needs to be measured. If you have a tube it's a lot easier to regulate her meals.

This Monday we signed in to the hospital and in the afternoon Alicia had surgery. It's a keyhole surgery to reduce the pain for the patient. I got to go with Alicia in to the surgery room and I stayed there until she feel asleep. It was really hard to leave her but two hours later we got to see her again and we were there when she woke up. 

The surgery went as it should and Alicia is recovering well. We stayed at the hospital for two nights and yesterday we got to go home.

Alicia has been doing really well through this and has hardly been complaining at all. Our sweet, brave little princess!!!







1 comment:

  1. Sweet Alicia. We are praying that this diet will help you grow away from the seizures. Ross and Linda...keep up the great job of providing for our adorable granddaughter! You two are unbelievable! Love, Mom L

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