A very special get together!

A couple of days ago we got to meet Joshua and his mom and sister. It was a very special get together. Joshua is diagnosed with the same syndrome as Alicia. This was the first time we got to meet somebody else with MPPH, and it was the first for them as well. 

We met up in a park in Georgetown, DC and hung out for a few hours. We had a lot to talk about and it was just amazing to feel the connection. It was great to talk to Joshua's mom and to share experiences. Joshua was such a sweet boy and it was so great to get the chance to meet him and his wonderful family!

Considering how rare Alicia's syndrome is I can't believe that there is another family just 20 minutes from Ross' parents place.  We are looking forward to meeting up next year again!